Founder & Chair
Patient Privacy Rights
In 2004, Dr. Peel founded Patient Privacy Rights (PPR), the world's leading consumer health privacy advocacy organization. PPR has over 12,000 members in all 50 states. In 2007, she founded the bipartisan Coalition for Patient Privacy, representing 10.3 million US citizens who want to control the use of personal health data in electronic systems. In 2007-2008, she led the development of PPR’s Trust Framework, 75+ auditable criteria that measure how effectively technology systems protect data privacy. The Framework can be used for research about privacy and to certify HIT systems. In 2011, Dr. Peel created the International Summits on the Future of Health Privacy, co-hosted by Georgetown Law Center. The 2013 summit keynote speakers were Peter Hustinx, Todd Park, Leon Rodriguez, Mark Rotenberg, and Melvin Urofsky. In 2012, her chapter in Information Privacy in the Evolving Healthcare Environment laid out a 5-year plan to move the US health IT system from institutional to patient control over health data. Dr. Peel was voted one of the “100 Most influential in Healthcare” in the US by ModernHealthcare magazine in 2007, 2008, 2009, and 2011—the first and only privacy expert ever listed. In 2013 she was named one of four “Healthcare IT Iconoclasts” by ModernHealthcare magazine and one of the “Top Ten Influencers in Health Information Security” by Healthcare Info Security.